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My journal of my battle with Crohns disease. I have had Crohn's diagnosed since September 2007. In that time I've been through two surgeries, two colonoscopies, and tons of good and bad times. I want to share my experiences with this disorder and hope to hear some feedback from time to time.

Crohn's Disease or Other IBD? You Don't Have to be Alone.

Wednesday, February 17, 2010
When I was first diagnosed with Crohn's Disease, I didn't know what it was. After finding out what I could be going through, I was scared. I thought I had been just handed a lifetime of sadness and pain. I felt alone and isolated. I didn't know anyone with a digestive disorder, so I had no one to talk to.

I had tons of questions. Can I still work? What can I eat? Will friends and family understand? What about the medications? Could my medications have side effects? How will Crohn's disease change my life? Can I die?

Surrounding myself with my loved ones and doctor, I tried to answer those questions. While they were able to comfort me a little, they didn't really understand what was going on with me. This made me very sad, and I didn't feel like fighting. This made my symptoms worse.

To find people who understood first-hand what I was going through, I turned to the internet. Through forums, twitter, and social networks, I found people just like me. People with crohns, colitis, and every type of digestive problem. There are people with mild and severe cases of ibds to get info, advice, and comfort from.

One of my favorite places to visit online is the Crohn's Disease Support Network. This sites goal goal is to help people living with Crohn's Disease, along with the families and friends of Crohn's patients. It is a social network for Crohn's Disease, and other IBDs. Its run by a great guy that is doing a lot for crohn's awareness Jason Leitman. There are tons of people on the CDSN that are going through every problem with ibds. You can get answers to your questions, advice, and just someone to talk to. You don't have to be alone. There are tons of crohnies out there waiting to help.

Thank you for reading. If you like my post, please check out my others. Let me know what you like, what you don't, and what you want to read. Please subscribe to my blog over on the right.
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Sweetpea said...

Thanks for sharing your experience. Your blog is great!

Jason said...

I am so grateful for your blog - and your putting a voice to Crohn's. I appreciate your support and the kind words about The Crohn's Disease Support Network - CDSN. It is kind words from people like you ..and others ..which help keep me motivated and fighting! My hope is no one living with any IBD feels they have a resource to turn to - NO ONE should be alone. Thanks again -Jason Leitman

RJ Taylor said...

Thank you both for the kind words.