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My journal of my battle with Crohns disease. I have had Crohn's diagnosed since September 2007. In that time I've been through two surgeries, two colonoscopies, and tons of good and bad times. I want to share my experiences with this disorder and hope to hear some feedback from time to time.

My Week - Less Pain, Less Prednisone, Add in Dicyclomine, and Maybe 6MP

Saturday, December 1, 2007
Its been over a week since I wrote an entry. Nothing has really change with me. After checking in with the doctor's office, my Prednisone was cut again. They now want me to take only two and a half pills per day. I guess that is good news. They did add a medicine called Dicyclomine. I think they said for the cramps that I still have. I'm also starting to feel less pain after a bowel movement. I am happy about that.

I was told by the doctor's nurse that to see what course of action we are going to take next that I have to have a test done. Looking at the test requisition, it's called Prometheus. On the sheet it looks like I am supposed to have a TPMT Genetics, TMPT Enzyme, IBD Serology 7, and Celiac Serology test done. Yeah, I have no idea what these are. But, I went to the lab the nurse referred me to, and the technitions there told that they were not sure they could do the tests. After waiting while they checked, they told me that they could, but I could not stay. They techs told me to just come back. Around a week later, I did return, and was told that they did not do this specific test. This left me a little angry because in that time I could have found somewhere else to go. Now that's what I'm doing. I should have had these labs around two weeks ago.

The doctor has talked about starting me on 6MP. I don't much about this treatment, but if it helps.
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NuttyMeatfruit said...

That is a very comprehensive IBD Panel - I think you'll be glad to get some definitive results - positive or negative, at least you'll know! Good luck :)

bluiddemon said...

hey i have crohns too. bleech it sux. if ur really having trouble u mite wanna talk about remicade w/ ur doc cuz it actually really helps. it helped me for a few months but w/ my kickass immune system it stopped working so my doc is thinking of changing me to humira (im only 13 but still) and then think that will help. good luck to ur pain.

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