Top Social

Im CrohnsFighter and this is My Fight against Crohn's Disease.

My journal of my battle with Crohns disease. I have had Crohn's diagnosed since September 2007. In that time I've been through two surgeries, two colonoscopies, and tons of good and bad times. I want to share my experiences with this disorder and hope to hear some feedback from time to time.

You Ever Wish Crohn's Disease Would Take a Break

Friday, August 3, 2018

Hey Crohn's, It's Friday.  Feel Free to take the weekend off.  I really wish it would sometimes.  Saturday mornings are the worst.  It always takes a good part of the morning for my digestive system to get going.  I'm not sure if that is because sleeping longer throws something off.  

Trying to leave the house early hardly ever happens.  There is too much back and forth toilet time. Then, if we leave around noon and grab something to eat, I usually have to find a toilet.  Ugh.  

I hope you all have a nice, easy, and pain free weekend.  Thank you for reading. 

It's Been A Rough Couple of Days

Thursday, August 2, 2018
I don't know what has been going on the last few days, but wow.  I haven't been to go, really go. It sucks.  I feel bloated, cramps have been coming and going, and I haven't been able to concentrate.  It has taken twenty minutes to get this far. 

I don't know what I've eaten to make this happen.  I've cut out drinking as much soda.  Tried to increase my water intake. I have added cherries to my diet.  Not sure if the new fiber source is throwing things off.  I think I will have to look into the type of fiber contained in cherries and make a post about it. 

Having to run to the restroom every hour or so because you think you have to.  But, nothing happens. Like I said, rough. I can feel the pressure building in my lower abdomen right now.  My heart-rate is around 90 bpm.  It usually speeds up along with the pressure builds. Shallow breaths and a slightly higher temp.  Ugggggh, this sucks. 
My thoughts right now. From

Sleeping with Crohn's Disease

Tuesday, July 31, 2018
Or trying to.  Waking up in the middle of the night doesn't happen to everyone with Crohn's, but for those who suffer, you know how bad it sucks. You would think that going to sleep would be an escape from your IBD symptoms, but nah.
Fitbit Charge 2 sleep readout
My Sleep Readout from my Fitbit.  Shows that I was awake twice which I remember.

For me, It's cramps, then a sudden urge to dart to the bathroom. Sometimes, it's a false alarm.  Most of the time it isn't. There are times I wake up clenching my stomach or lighting sweating. My Fitbit always shows my heart rate elevated.   

I'm usually out of bed for five to ten minutes.  Rough nights will have me awake for 45 minutes or so. Those are the worse. Imagine trying to stay awake the next day at work and then going to work out. Not fun.

Having your Crohn's Disease symptoms wake you up is something that happens to people having a flare.  But, those not have a flare-up can still have the same issue.

It doesn't happen all the time for me, and since beginning to work out, it's happening less. I've been reading online and trying different tips and tricks to see if I can gain a little more sleep.  Eating fewer carbs in the evening, or cutting back on caffeine.  Also, trying to eat dinner earlier in the evening.

If you are having trouble sleep with your Crohn's Disease or IBD symptoms, make sure to speak with your GI. Especially if this is a new issue.   Do a little research online as well to see if there are small changes you can make.

Thanks for reading my post.  Let's finish the week strong and pain-free!


Sunday's Fun Workout From Heck

Monday, July 30, 2018
We switched the Sunday workout a little. After Thursday, I was still feeling the burn. We were looking for some different, something active.  We had originally planned to drive to St. Joseph, MO for Kansas City Chiefs training camp. We purchased season tickets this year and Sunday was blocked off for those members. We didn't go because of the rain.

So, looking for something else to do, Jess suggested SkyZone.  I hopped into the Groupon app and found a couple of 2-hour jump passes.  Once we arrived, we filled out our waivers (make sure you do it before going to the counter) and were on our way.

Jumping for that long is something else! It took pretty much my whole body to keep jumping as high and long as I was.  Jumping into the foam pit was fun.  I'm glad I was reminded to not jump into the pit with my phone.  That could have been bad if dropped. Haha.  I attempted some flips, the main word there is attempted.  It's in the video.  My better half was able to have a little more fun tumbling.  She used to be a gymnast.

I took a swing at the warped wall, which was fun and not as difficult as I thought.  The climbing wall was awesome and I think I need to incorporate that into my workout somehow.  I loved the feeling of pulling yourself up and trying to decide where to place your hands and feet. I was covered with sweat after the short climb. My Fitbit said I burned around 600 after the two hours, while my Apple Watch said I burned around 1200.  I'm not sure which one is right, but I'm sure it was a great deal. Like I've mentioned, my goal isn't to burn calories, but to get stronger.

I think after this weekends outing, we may have to incorporate around gyms with day passes into the routine.  Crossfit, boxing, or a climbing gym. Those all sound fun.

Thanks for reading.